Utah Children with Special Health Care Needs (CSHCN)
Part of the Utah Department of Health, Division of Community and Family Health Services. CSHCN provides and promotes family-centered, coordinated care and facilitates the development of community-based systems for these children and their families. It includes the following services:
- Adaptive, Behavior and Learning Evaluation (ABLE): Serves multi-problem, school-aged children and their families.
- Baby Watch Early Intervention (BWEI): Provides early intervention services statewide for children with developmental delays and disabilities from birth to age 3.
- Child Development Clinic (CDC): Provides clinical services for children from birth to age 5. Services are designed to first provide timely evaluation and care plans and second to coordinate the delivery of services with the medical home and local agencies.
- Hearing Speech and Vision Services (HSVS): Provides statewide hearing screening and makes appropriate referral for infants and children with hearing, speech and/or vision problems. Provides reconditioned hearing aides to children whose families qualify.
- Neonatal Follow Up Program (NFP): A statewide program providing follow-up for very low birth weight newborns from birth to age 2-1/2 years.
- Specialty Clinics: Ensures access to pediatric specialty clinics. Neurology, Genetics, Orthopedics, and other.
- Utah Med Home Portal and National Med Home Portal: Provides information for providers, families, and youth with special health care needs. Includes information on resources and supports, screening and prevention, technology, terms and acronyms, care coordination, pediatric to adult care, collaborating with schools and educators, and ways to help the child and youth with special health care needs prepare individuals to take charge of their own health care and to lead a productive life as they choose. This website includes a special section on information for Education & Schools that was prepared in collaboration with the Utah State Office of Education and an excellent section on Transition Issues from birth to adulthood.
Additional Related Sources include:
- Family Voices: Includes information on Quality Health Care for Children with Special Health Care Needs, Medical Services under the Social Security Act, and Patient Bill of Rights, Medicaid and Medicaid Waivers, Private Insurance and managed care including HMOs, PPOs, POS; Public Health System Insurance Plans including CHIP, UPP & PCN.
- Utah Family Voices: List of resources in Utah. Be sure to sign up for their Health-E-Newsletter. If you have trouble registering for the newsletter on that site go to Utah Parent Center Site and register for the newsletter.
- Center for Persons with Disabilities (CPD) Utah State University: Provides information for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent for all children and youth with special health care needs.
- Healthy and Ready to Work (HRTW): Success in the classroom, within the community, and on the job requires that young people with special health care needs stay healthy. To stay healthy, young people need an understanding of their health and to participate in their health care decisions.

